Wednesday, December 10, 2008

My Sob Story

There isn't a great place to start my "story". I think the fatigue started when I was 14, but unfortunately symptoms like fatigue can start in very slowly.

Between 14-16, I puffed out so fast I have large stretch marks to this day. They were a lovely shade of red for years.

From girl who climbed trees and went bike-riding to the girl who just took long slow walks.

You may or may not be able to imagine the frustration. In the many following years, I tried dieting, I tried exercising, to no avail. Some of you... you diet, you exercise, you actually lose weight. Thinking back, I'm not surprised I didn't lose any weight with my efforts- I was quite active when I initially started gaining weight, in the first place!

My junior year of highschool I kept getting sick, so my tonsils and adenoids were ripped right out. Senior year though, I was thinking to myself, why do I still have the bouts of fatigue that I had last year, now without actually getting sick?

But when I started college, I was all optimistic- I assumed I would be able to go to school full time and swing a part time job, then maybe fit in a few social activities. A mere 5 years later, surely I'd be on my way to a high paying job. Yeah... no. In college, I started drinking coffee, and then, more coffee, trying to keep up with the worsening fatigue.

Several fuzzy years followed. I remember locking myself out of my apartment 6 times one month. I remember not being able to remember my mail box number, even after months. I remember random things starting to ache, hands getting cold more and more frequently. I remember awful weakness.

The worst part of those years, I think, was:

*The way my hands hurt whenever I got even a little cold. Cold feet, cold hands, to be avoided at all costs. Yes, I'm sure everyone's hands hurt when they are freezing. But not many people report the same aching stabbing *joint* pain in their hands just when they get chilled. Nor do they get chilled as often. I once described it this way to a friend: someone has threaded a piece of yarn or string through all of your finger joints, and then has grabbed both ends, pulling back and forth so that you get rug-burn in your joint.

*The way I'd get jittery and weak. You might think the jitters would be the result of coffee, cause it's the devil, you know. But I didn't actually OD on caffeine, and the coffee was actually just exacerbating an issue I'd had since high school. It's kinda like hypoglycemia (something I'd never heard of until last year, when I was 23). I seem to have odd symptoms in conjunction with hunger- protein seems to help quite a bit. Over periods of time, sometimes this will be more of an issue, sometimes not. During periods of time, if I didn't get food right away, I'd become confused and weak. And by confused, I mean, can't even decide wtf to eat while I'm standing in the kitchen... for an extended period of time.

*The memory troubles and cognitive slowing that would become more frequent. 'Brain fog' anyone? We used to joke about my "early Alzheimers"

I had to drop my job. Too tired to get up one morning for my shift.

I went down to fewer credits.

I moved out of the dorms and into a one bedroom apartment.

I was attempting stress reduction. I'd considered several angles for what the effing problem was, and could tell that stress really, really didn't help.

But still... why were others able to physically handle more stress? Surely a young woman in her 20's should be able to manage full time college semesters? I didn't even have to do particularly well, just to graduate with a decent GPA. College is stressful, we know that, but my decline in the face of these expected stresses was disheartening.

At heart, I'd like to be a workaholic. My parents, they worked hard to achieve what they have. So from a young age, I was all about achieving academically. Accepting that I can no longer achieve the stellar grades I was once able to achieve... was difficult for me.

Well, around age 23, I was managing. Pushing along. Things weren't easy, but as long as I was making some progress on my college degree and getting halfway decent grades, I had something to hang on to. I was in the 'accepting my limitations' phase. Then, the winter of 07-08 smacked me around.

6 comments:

Pam said...

sounds like you went a real long time without being diagnosed. it took me about 4 or 5 years to get diagnosed. my hands STILL hurt if they get cold...like holding a cold drink. my hands will get cold if i hold something in them too long like the comp mouse or tv remote. very weird. i'm on meds & whole lot better than early days, but ya know, our symptoms rear their ugly little heads once in awhile.

are you finally on meds? how's it going for you? i had to ask to be put on cytomel on top of levothroid. cytomel was my life saver.

Vague Rambler said...

Long time indeed!

I actually only got a diagnosis last September (08). I've been on synthroid since then. It's only a small dose but... but hands and feet, they don't get cold nearly as often an more, and I seem to be able to a little less tired. It is not a miracle cure but... I'll take any improvement!

I'll give things a few more months, and consider more options- I'm definitely going to look up the cytomel you mentioned. (I've not even heard of that yet, in my reading).

Pam said...

i'll have to do a post on that. it's a t3 med. glad you're on meds now. yeah, i noticed improvements when i first started, too, but the first few doses weren't enough. you're inspiring me to keep up a bit more on my thyroid blog. i'm just lazy or is it tired all the time? maybe both.hehe

Vague Rambler said...

More posts! I'd like to read more from you.

I actually stumbled upon your "My Thyroid Story Part 1" on wellsphere just last night.

I've been trying to find more blogs on topic ::poking the internet to see what else shows up::

Pam said...

looks like i'll have to do my part 2. i've just been slacking big time w it. but it's time to get serious. i want to keep myself informed as well as others if it helps them in some way.

Vague Rambler said...

I have no doubt that more and more people will be on the internet in the future- and some of those, they will be looking for us. It really is invaluable to hear more from other patients, rather than just a bullet point symptom list, you know?

We shall see how long I keep up with my frequent postings. If it spurs you to write more, well, added incentive.